多重残疾,深度智力多重残疾:一个高度特定的公共卫生问题的概念和定义
Marie-Christine Rousseau1, Myriam Winance2, Karine Baumstarck3
1EA 3279, CEReSS - Research Centre on Health Services and Quality of Life, Aix Marseille University, 27 boulevard Jean-Moulin, 13385 Marseille, France; Hôpital San Salvadour, Hospital Fédération des Hôpitaux de Polyhandicap et Multihandicap, University Hospital of Paris, 4312 Rte de l'Almanarre, 83400 Hyères, France.
概括
多重残疾是指多重残疾的个人,缺乏全球定义,阻碍了研究和护理. 需要国际共识来认识到他们的独特需求并改善健康规划.
科学领域:
- 关于残疾人的研究.
- 医学史 医学史 医学史
- 公共卫生 公共卫生
背景情况:
- 多重残疾的概念起源于20世纪60年代末的法国,在国内建立了定义.
- 关于多重残疾的定义和术语的国际共识仍然难以捉摸,影响研究和健康规划.
- 特殊教育和照顾残疾儿童的历史发展为多残疾人的出现提供了背景.
研究的目的:
- 追踪法国和国际多残疾人概念和定义的历史出现.
- 强调需要在多重残疾的定义和术语上达成国际共识.
主要方法:
- 对这个概念在法国和全球发展的历史分析.
- 审查不同国家和文献中使用的术语.
主要成果:
- 在法国,1970年至2002年间,专业人士和家庭协会对多重残疾的定义进行了改进.
- 在国际上",多残疾"一词在法国,意大利,法语地区比利时和瑞士使用.
- 深度智力和多重残疾 (PIMD) 是一个经常用于类似情况的国际术语,并不总是与早期脑损伤有关.
结论:
- 多障碍概念和定义的国际化正在进行中,旨在实现类似于脑的全球合作.
- 在一个精确的定义上达成共识对于承认多重残疾个体的独特性和提供量身定制的护理至关重要.
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