育儿一个患有唐氏综合征的孩子:从自决理论的角度对父母的经验和行为进行定性研究
Eline N Desimpelaere1, Lana E De Clercq1, Bart Soenens2
1Ghent University, Department of Special Needs Education, Henri Dunantlaan 1, B-9000 Ghent, Belgium.
Journal of pediatric nursing
|November 2, 2023
概括
养育患有唐氏综合征 (DS) 的孩子提供了联系的机会,但也给父母的福祉和能力带来了挑战. 了解这些经历是支持家庭的关键.
科学领域:
- 心理学 心理学 心理学
- 家庭研究 家庭研究
- 发育障碍 发育障碍是一种发展障碍.
背景情况:
- 定量研究表明,患有唐氏综合征 (DS) 的孩子的父母经历了较高的压力和较低的幸福感.
- 需要一种定性方法来对这些父母的经历有细微的理解.
研究的目的:
- 质量地探索父母抚养患有DS的孩子的经验和行为.
- 检查父母的心理需求 (自主,亲属关系,能力) 如何受到影响.
- 了解父母如何支持孩子的心理需求.
主要方法:
- 用自决理论作为框架.
- 进行了11次深入采访,与患有DS的儿童 (4-23岁) 的父母进行了深入采访.
- 采用主题分析来确定关键主题.
主要成果:
- 确定了六个主题的父母经验和三个主题的育儿行为.
- 父母报告了满足需求的机会,特别是亲属关系.
- 在家庭关系,个人自由,职业和能力方面发现了挑战.
结论:
- 父母在亲属关系中获得满足,但面临着影响个人和职业生活的挑战.
- 基本的育儿实践包括培养独立性,同情心和耐心.
- 调查结果为促进父母福祉和需要支持的育儿提供了洞察力.
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