在产前诊断出复杂先天性心脏缺陷后,父母的心理和决策结果:一项探索性研究
Alistair Thorpe1,2, Rebecca K Delaney1, Nelangi M Pinto3,4
1University of Utah Intermountain Healthcare Department of Population Health Sciences, Salt Lake City, UT, USA.
MDM policy & practice
|November 3, 2023
概括
面对复杂先天性心脏缺陷 (CHD) 诊断的胎儿的父母在选择以舒适为导向的护理而不是手术时,经历了更大的痛苦和遗憾. 量身定制的支持对于父母的幸福至关重要.
科学领域:
- 围产期心理健康问题
- 遗传性心脏缺陷 (CHD) 研究研究
- 在高风险怀孕中的决策.
背景情况:
- 产前诊断复杂的先天性心脏缺陷 (CHDs) 给父母带来了重大的心理风险.
- 了解父母的结果对于制定有针对性的支持策略至关重要.
研究的目的:
- 根据父母选择的治疗途径和胎儿/新生儿存活率,调查父母之间心理和决策结果的差异.
- 为经历高风险怀孕的父母提供量身定制干预措施的发展提供信息.
主要方法:
- 诊断出患有复杂,危及生命的冠状动脉疾病的胎儿的父母的未来入学情况 (2018年9月 - 2020年12月).
- 在治疗后3个月评估父母的心理和决策结果.
- 选择手术与舒适指导护理的父母之间的结果的比较,考虑生存状态.
主要成果:
- 与选择手术的父母相比,选择以舒适为导向的护理的父母报告了明显更高的痛苦,抑郁,产后悲伤,遗憾和决策冲突.
- 生存状态也影响了悲伤水平,幸存婴儿的父母报告的悲伤程度低于那些婴儿没有经历手术的父母.
- 该研究包括23名父母,主要是女性和非西班牙裔白人,平均年龄为27岁.
结论:
- 父母的心理和决策结果受到治疗选择和复杂心脏病诊断后的生存状况的重大影响.
- 干预措施和护理策略应根据个别家长的决定和结果进行调整,以提高应对能力和福祉.
- 需要进一步的研究来探索这些差异,并完善支持机制.
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