实施多发性硬化症的共享决策:MS-SUPPORT工具
Nananda F Col1, Andrew J Solomon2, Enrique Alvarez3
1Shared Decision Making Resources, Georgetown, ME.
Multiple sclerosis and related disorders
|November 6, 2023
概括
该MS-SUPPORT工具改善了多发性硬化症 (MS) 患者的坚持和心理健康,通过促进有关疾病修饰疗法 (DMT) 的共享决策 (SDM). 这种以患者为中心的方法提高了治疗的理解和坚持.
科学领域:
- 神经学 神经学
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
背景情况:
- 多发性硬化症 (MS) 治疗决策是复杂的,需要改进共享决策 (SDM) 流程.
- 需要以患者为中心的工具来支持MS (pwMS) 患者选择疾病修饰疗法 (DMT).
- 该MS-SUPPORT工具是为了促进pwMS的SDM而开发的.
研究的目的:
- 评估MS-SUPPORT工具对DMT决策的可行性和影响.
- 评估MS-SUPPORT对pwMS的SDM流程和生活质量的影响.
- 将MS-SUPPORT干预与多站点随机对照试验中的常规护理进行比较.
主要方法:
- 一个为期12个月的随机对照试验将MS-SUPPORT干预与常规护理进行了比较.
- 参与者包括复发性多发性硬化症的英语成年人和他们的临床医生.
- MS-SUPPORT是一个与pwMS共同创建的在线交互式决策辅助工具,提供量身定制的信息并生成个性化摘要供临床医生审查.
主要成果:
- 患者强烈推MS-SUPPORT,改善了他们对选择和DMT坚持的理解.
- 干预组显示了DMT使用率更高的趋势,并且对每日剂量DMT的坚持明显更好.
- 与对照组相比,使用MS-SUPPORT的患者报告的精神健康状况不佳日数较少.
结论:
- MS-SUPPORT是一种可行的,经过良好认可的工具,用于增强MS在MS护理中的SDM.
- 该工具对DMT的启动,坚持和患者的心理健康产生了积极的影响.
- 进一步的研究应该探索MS-SUPPORT的现实世界实施和加强策略.
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