下一代的免费的下一代的免费? 在浏览赞助基因测试时要考虑的要点
Kirsten Bartels1, Samantha Afonso2, Lindsay Brown3
1Department of Medicine, Providence Health Care Heart Centre, St. Paul's Hospital, Vancouver, British Columbia, Canada.
Journal of medical genetics
|November 6, 2023
概括
赞助的遗传和基因组测试 (GT) 为昂贵的测试提供了替代方案,但对加拿大医疗保健从业者来说,这引发了伦理和法律方面的担忧. 需要进一步的研究来了解公共资助系统中的这些影响.
科学领域:
- 医学遗传学 医学遗传学
- 生物伦理学生物伦理学
- 卫生政策 卫生政策
背景情况:
- 基因和基因组测试 (GT) 越来越多地被纳入患者护理.
- 高成本和访问差异限制了GT的广泛使用.
- 由行业补贴的赞助GT已经成为一个潜在的解决方案.
研究的目的:
- 为加拿大医疗保健从业人员提供关于赞助GT的初步指导.
- 突出行业赞助的GT的伦理和法律方面的考虑.
- 要强调需要进一步研究和对话这个主题.
主要方法:
- 本文档是一份初步指导性文件.
- 它综合了加拿大目前对赞助GT的理解.
- 它确定了关键的伦理,法律和政策考虑因素.
主要成果:
- 赞助GT可能会改善对测试的准入.
- 产业赞助商可能会获得患者遗传数据和其他敏感信息.
- 赞助GT的整合在加拿大公共资助的医疗保健系统中带来了挑战.
结论:
- 加拿大医疗保健从业人员在遇到赞助GT时需要指导.
- 潜在的利益冲突和数据隐私问题需要仔细考虑.
- 迫切的研究和对话是必要的,以开发赞助GT的全面框架.
更多相关视频
09:30Pre-Implantation Genetic Testing for Aneuploidy on a Semiconductor Based Next-Generation Sequencing Platform
Published on: August 17, 2022
3.1K
09:33Author Spotlight: Finding New Therapeutic Targets for Malignant Peripheral Nerve Sheath Tumor Through Genome-Scale shRNA Screens
Published on: August 25, 2023
1.2K
相关概念视频
Genome-wide Association Studies-GWAS
13.5K
Genome-wide association studies or GWAS are used to identify whether common SNPs are associated with certain diseases. Suppose specific SNPs are more frequently observed in individuals with a particular disease than those without the disease. In that case, those SNPs are said to be associated with the disease. Chi-square analysis is performed to check the probability of the allele likely to be associated with the disease.
GWAS does not require the identification of the target gene involved in...
GWAS does not require the identification of the target gene involved in...
13.5K
Behavioral Genetics and Its Designs
381
Behavior genetics explores how genetic inheritance influences human behavior. It focuses on how genes, passed from parents to offspring, contribute to the development of behavioral traits and tendencies. This branch of genetics seeks to understand the complex interplay between inherited genetic factors and environmental influences in shaping our behaviors.
The primary methodologies used in behavior genetics include family studies, twin studies, and adoption studies, each providing unique...
The primary methodologies used in behavior genetics include family studies, twin studies, and adoption studies, each providing unique...
381
Human Genetics
587
Human genetics provides a profound framework for understanding the interplay between genetic predispositions and human psychology. At the heart of this discipline lies the study of how genes influence physical traits, behaviors, and susceptibility to diseases. Each person carries a unique genetic code that subtly or significantly shapes their psychological and behavioral landscape.
The complex relationship between genetics and psychology is observable through common biological components such...
The complex relationship between genetics and psychology is observable through common biological components such...
587
