年轻成年人关于生活在家里机械通风的叙述 - 一个现象学解释学研究
Åsa Israelsson-Skogsberg1,2, Andreas Palm3, Berit Lindahl1
1Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.
Disability and rehabilitation
|November 7, 2023
概括
年轻人使用家用机械通风 (HMV) 经历了良好的生活,尽管面临挑战. 支持性医疗保健团队对于他们的教育和职业机会至关重要.
科学领域:
- 医学科学 医学科学 医学科学
- 康复医学 康复医学 康复医学
- 呼吸系统医学 呼吸系统医学
背景情况:
- 家庭机械通风 (HMV) 越来越多地用于患有复杂疾病和呼吸衰竭的儿科和年轻成人患者.
- 了解使用HMV的年轻成年人的生活经验对于改善他们的生活质量和社会参与至关重要.
研究的目的:
- 探索使用HMV的年轻成年人的日常生活经验.
- 调查他们的身体障碍和挑战.
- 评估教育和职业生涯的机会.
主要方法:
- 定性研究涉及9名年轻HMV用户 (18-31岁) 的叙事采访.
- 参与者包括侵入性,非侵入性和CPAP通风器用户.
- 使用现象学解释学方法分析数据.
主要成果:
- 参与者报告说,他们经历了美好而有价值的生活,经常感觉健康.
- 挑战包括社会偏见和化的社会结构.
- 多专业团队为安全和社会参与做出了重大贡献.
结论:
- 对于患有复杂疾病的个人来说,长期获得有能力和支持的多专业医疗保健团队至关重要.
- 这些团队为日常生活提供必要的人力和技术支持.
- 有效的支持促进HMV用户的高等教育和专业参与.
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