头癌在线支持小组:参与差异和对患者的影响
Benjamin Tam1, Matthew Lin1, Carlos Castellanos1
1Caruso Department of Otolaryngology-Head and Neck Surgery Keck School of Medicine of the University of Southern California Los Angeles California USA.
OTO open
|November 7, 2023
概括
在线支持小组 (OSG) 为头癌 (HNC) 患者提供了一个有价值的社区. 这些OSG为分享经验和获得支持提供了一个有益的空间,补充了传统的医疗保健.
科学领域:
- 在瘤学瘤学.
- 患者支持 患者支持
- 数字健康数字健康
背景情况:
- 头癌 (HNC) 为患者带来了独特的挑战.
- 在线支持小组 (OSG) 已经成为慢性疾病患者的重要资源.
- 了解用户人口统计和HNC特定OSG的好处对于优化患者护理至关重要.
研究的目的:
- 描述头癌 (HNC) 在线支持小组 (OSG) 的用户基础.
- 描述患者对HNC OSG的感知好处和使用模式.
- 为医疗保健提供者提供有关OSG在HNC患者支持中的作用的信息.
主要方法:
- 在Facebook上对五家最大的HNC OSG的用户进行了横截面的在线调查.
- 该调查收集了有关参与者的人口统计,癌症病史,治疗方式和OSG经验的数据.
- 分析了97项完成调查的数据,以确定用户特征和感知到的好处.
主要成果:
- 研究队列包括97名参与者,平均年龄为57.8岁;大多数是女性 (50.5%) 和白人 (92.8%).
- 参与者受过高等教育 (65.5%的大学毕业生),收入高 (41.8%>10万美元).
- 在其他支持类型中,OSG被优先考虑,大量使用 (80.0%每周几次),主要用于分享经验 (76.3%) 和获得支持 (85.6%),排名第三的医疗信息来源.
结论:
- 头癌在线支持小组为患者培养一个有益的社区.
- OSG作为HNC患者的宝贵补充资源,补充了专业的医疗建议.
- 耳鼻喉科医生应该考虑推HNC OSGs作为常规治疗和支持策略的辅助.
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