探索和支持父母在NICU中失去的故事:一个叙事研究
Jenna Lakhani1, Cheryl Mack1,2,3, Diane Kunyk3,4
1Department of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Qualitative health research
|November 7, 2023
概括
悲伤的父母失去了他们的父母.
科学领域:
- 新生儿重症监护病房 (NICU) 的护理.
- 儿科缓和护理是儿童的缓和护理.
- 关于悲伤的研究.
背景情况:
- 新生儿重症监护室 (NICU) 经常面临由于极端早产和先天性异常的婴儿死亡率.
- 在NICU中医疗婴儿死亡需要复杂的关于生活质量的伦理决策.
- 家长在新生儿重症监护室的悲伤和丧失经历强调了需要支持性护理的需要.
研究的目的:
- 探讨那些选择为婴儿在NICU的息治疗的父母的经历和反思.
- 了解导向家长决策和道德意义的叙事伦理在NICU经验和丧亲期间.
- 确定关键的护理要素,以支持父母应对孩子的丧失.
主要方法:
- 进行了一项叙事调查研究,以引出悲伤的父母的故事.
- 通过深入采访收集数据,重点关注父母对孩子生活和NICU护理的反思.
- 叙述伦理原则被应用来分析父母对他们的经历的道德意义.
主要成果:
- 父母的故事强调了与婴儿一起度过有意义的时间的重要性.
- 有效的沟通,承认不确定性和富有同情心的照顾对于父母的支持至关重要.
- 这些因素有助于家长道德处理他们的NICU经历和长期丧亲.
结论:
- 来自NICU的家长叙述提供了宝贵的见解儿科息护理和丧亲.
- 优先考虑有意义的时间,开放的沟通和同情心可以加强对面临婴儿丧失的家庭的支持.
- 了解这些叙述对于改善新生儿环境中的终身护理和丧生支持至关重要.
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