人口遗传学的叙述:冰岛和俄罗斯的两个案例
1Lomonosov Moscow State University, Russian Federation.
Public understanding of science (Bristol, England)
|November 9, 2023
概括
基因项目的叙述可以掩盖道德问题,损害公众的信任. 专注于人权和事实讨论对于负责任的科学传播和公众对遗传学的参与至关重要.
科学领域:
- 遗传学 是一个遗传学.
- 生物伦理学生物伦理学
- 科学与技术研究 研究科学与技术研究
背景情况:
- 国家生物银行项目往往依赖于叙述和想象来获得公众的接受.
- 这些叙述可能无法充分解决道德和社会经济方面的影响.
- 以前的方法并没有完全批评使用国家想象力来塑造公众对遗传倡议的看法.
研究的目的:
- 批判性地分析叙述和想象在公众对遗传生物银行项目的理解中的作用.
- 检查这些表现如何掩盖道德问题并影响公众的信任.
- 为公众参与遗传学提出替代方法.
主要方法:
- 对冰岛卫生部门数据库和俄罗斯生物银行计划进行比较的案例研究分析.
- 对项目叙述和相关想象的批判性话语分析.
- 在人权框架的背景下,研究伦理和社会经济影响.
主要成果:
- 基因生物银行中的叙述可以促进情感思维,并分散人们的注意力,而不是切实的伦理/社会经济问题.
- 冰岛案例:国家想象力隐藏了市场身份,冒着生物数据商品化的风险.
- 俄罗斯案例:"遗传主权"叙述使国家证券化成为可能.
结论:
- 对塑造公众对遗传学的理解来说,叙述和想象是不够的,也是有问题的.
- 坚持人权框架和事实上的公共话语是必不可少的.
- 促进批判性,以证据为基础的讨论可以抵消生物银行观念的负面趋势.
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