慢性鼻炎的探索性分析 在线支持社区
Ruben Ulloa1, Benjamin Tam1, Francis Reyes Orozco1
1Caruso Department of Otolaryngology-Head and Neck Surgery Keck School of Medicine of the University of Southern California Los Angeles California USA.
OTO open
|November 9, 2023
概括
患有慢性鼻炎 (CRS) 的患者在在线支持社区 (OSC) 中找到有价值的支持和信息. 这些社区积极影响疾病管理,并影响医疗决策.
科学领域:
- 医疗信息学 医疗信息学
- 患者支持系统 患者支持系统
- 慢性疾病管理 慢性疾病管理
背景情况:
- 慢性鼻炎 (CRS) 显著影响患者的生活质量.
- 患者越来越多地利用在线支持社区 (OSC) 获取健康信息和同行支持.
- 了解OSC在CRS管理中的作用对于医疗保健提供者来说至关重要.
研究的目的:
- 描述慢性鼻炎 (CRS) 在线支持社区 (OSC) 的用户.
- 描述OSC对CRS患者的感知好处.
- 了解OSC会员资格如何影响患者的医疗决策.
主要方法:
- 一个横截面的在线调查被调整并分发给CRS患者在Facebook和Reddit群组.
- 调查数据收集了三个月的时间.
- 分析了数据以确定用户人口统计,动机,感知到的好处和对决策的影响.
主要成果:
- 127名参与者从事OSC,主要是女性 (65.35%) 和白人 (76.98%),平均年龄为38.
- 大多数用户加入学习CRS管理技巧 (89.7%),并发现共享经验 (79.5%) 的价值.
- 在超过一半的参与者中,OSC参与改善了CRS知识 (87.41%) 并影响了医疗决策 (54.33%).
结论:
- 大多数经常参与的CRS患者在OSC中报告了积极的经验.
- OSC 对于 CRS 患者来说,是他们管理病情的宝贵资源.
- 这些社区在患者教育和医疗保健决策中发挥着重要作用.
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