与COPD生活:通过光声镜头了解患者的经历
Jennifer Sumner1, Anjali Bundele2, Ravi Shankar2
1Medical Affairs - Research, Innovation & Enterprise, Alexandra Hospital, National University Health System, Singapore, Singapore. Jennifer_sumner@nuhs.edu.sg.
BMC pulmonary medicine
|November 10, 2023
概括
"光声"揭示了慢性阻塞性肺病 (COPD) 如何深刻影响患者的日常生活. 这种方法捕捉了各种经验和应对策略,为COPD患者提供了新的沟通途径.
科学领域:
- 医学社会学 医学社会学
- 质量健康研究 质量健康研究
- 患者体验研究 患者体验研究
背景情况:
- 传统的研究方法可能无法完全捕捉患有慢性阻塞性肺部疾病 (COPD) 的人的经历.
- 采用了一种新的光声方法,探索COPD对多元文化亚洲环境中的日常活动的影响.
研究的目的:
- 了解慢性阻塞性肺病 (COPD) 对患者日常生活活动 (ADL) 的多方面的影响.
- 探索患者生成的视觉数据和叙述,以更深入地了解COPD的生活经验.
主要方法:
- 来自新加坡门诊的八名COPD患者的有目的抽样 (2020年12月至2021年8月).
- 光声方法:参与者拍摄了COPD影响的ADL的各个方面,随后进行了深入采访.
- 数据使用解释性现象学分析 (IPA) 进行分析.
主要成果:
- 慢性肺炎和呼吸困难显著改变了参与者的日常生活,需要适应性策略来完成日常任务.
- 观察到积极和被动的应对机制,以及报告的丧,焦虑和孤立的感觉.
- 气候和文化实践 (传统医学) 等环境因素影响了ADLs.
结论:
- 光声技术为了解COPD患者的经历提供了一种有价值的替代通信方法.
- 这种方法增强了对生活经验的理解,特别是对于那些发现传统面试具有挑战性的患者来说.
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