心肌病治疗中的耻辱表现对黑人患者的治疗结果产生影响:一项定性研究
Morgan Wolfgang1, Laura Beskow2, Gillian Hooker2
1Vanderbilt University, Nashville, TN, USA. morgan.wolfgang1997@gmail.com.
BMC cardiovascular disorders
|November 10, 2023
概括
黑人心肌病患者经历交叉的耻辱,包括歧视和偏见,影响他们的护理和遗传检测. 解决提供者偏见对于公平的心脏病学和遗传学服务至关重要.
科学领域:
- 心脏病学 心脏病学
- 医学遗传学 医学遗传学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 在心脏病和心脏遗传检测结果方面存在种族差异.
- 交叉的耻辱是这些不平等的一个可能的贡献者.
- 有限的研究探讨了黑人心肌病患者群体中的耻辱感.
研究的目的:
- 描述黑人心肌病患者经历的交叉耻辱表现.
- 了解污名化如何影响心脏病学和遗传服务的护理和结果.
主要方法:
- 使用采访对14名黑人心肌病患者进行定性探索性研究.
- 采访指南由健康耻辱和歧视框架提供信息.
- 收集关于人口统计,诊断,家族史和遗传检测/咨询的数据.
主要成果:
- 超过一半的参与者报告了来自医疗保健提供者的交叉耻辱 (种族,年龄,体重).
- 耻辱包括身体粗暴,隐信息,非个人照顾,胁迫和冒犯性语言.
- 影响包括获得护理的机会减少,基因测试采用率降低,诊断延迟和信任受到侵蚀.
结论:
- 交叉性耻辱显著影响黑人心肌病患者的临床和遗传结果.
- 提供者偏见会对心脏病治疗和遗传服务产生负面影响.
- 建议采取促进具有文化能力的护理和进一步研究的干预措施.
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