在帕金森病的护理负担的民族种族差异
Ece Bayram1, Hongliang Liu2, Sheng Luo3
1Parkinson and Other Movement Disorders Center, Department of Neurosciences, University of California San Diego, La Jolla, CA, USA.
Parkinsonism & related disorders
|November 12, 2023
概括
在帕金森病 (PD) 中,护理人员的负担在不同种族群体之间有很大差异. 了解这些差异对于为所有患有PD的人及其家人提供量身定制,有文化能力的支持至关重要.
科学领域:
- 神经学 神经学
- 老年学是一门学科.
- 社会学 社会学 社会学
背景情况:
- 护理人员在帕金森病 (PD) 管理中至关重要,特别是在晚期.
- 症状表现和PD患者需求因种族背景而异.
- 调查跨民族种族群体的不同护理需求是必不可少的.
研究的目的:
- 检查和比较帕金森病患者 (PwP) 的不同种族群体的护理人员负担.
- 根据患者的种族背景而有所不同,识别护理人员菌株的特定领域.
- 评估临床和人口因素对不同种族背景下的护理人员负担的影响.
主要方法:
- 利用了来自帕金森基金会成果项目的数据,包括西班牙裔 (n=495),非西班牙裔亚裔 (n=170),非西班牙裔黑人 (n=162) 和非西班牙裔白人 (n=7687) PwP.
- 在各民族种族群体中比较横截面和纵向的多维护者应变指数 (MCSI) 成绩.
- 分析了人口统计,临床变量及其与民族种族群体的相互作用对护理人员负担的影响.
主要成果:
- 非西班牙裔亚洲PwP护理人员报告总体负担最高.
- 非西班牙裔白人PwP护理人员的负担最小,尽管患者年龄较大.
- 具体负担各不相同:亚洲人的身体/社会,西班牙裔护理人员的财务/老年需求.
- 随着时间的推移,照顾者的负担在不同群体中同样增加,但像跌倒和社会支持这样的预测因素对种族/种族产生了不同的影响.
结论:
- 帕金森病的护理人员负担不均,并因患者的种族背景而有很大差异.
- 诸如社会支持和跌倒等因素对照顾者的负担的影响因种族和种族而异.
- 在文化上有能力的评估和支持对于解决PD所有护理人员的多样化需求至关重要.
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