赫施普朗格病:对患者信息的识字分析
April L Baum1, Anh Nguyen1, Michael J Valentine1
1Pediatrics, Kansas City University, Kansas City, USA.
Cureus
|November 13, 2023
概括
在线关于赫施普隆病的信息很难阅读,平均为9年级的水平. 改善可读性对于寻求有关这种疾病的健康信息的家庭至关重要.
科学领域:
- 医学研究 医学研究
- 卫生沟通健康沟通
- 儿科外科手术 儿科外科手术
背景情况:
- 赫施普朗格病是新生儿的一种严重的先天性疾病.
- 诸如希尔施普朗相关肠球炎等并发症存在重大风险.
- 可访问的健康信息对于管理复杂疾病的家庭至关重要.
研究的目的:
- 为了评估在线健康信息的可读性,对于希尔施普朗格病.
- 评估平均健康素养的个人对信息的可访问性.
- 为了分析复杂的儿科疾病的搜索引擎结果质量.
主要方法:
- 分析了谷歌上前20个搜索结果中的"Hirschsprung病"和"aganglionic megacolon".
- 使用多个标准化可读性评分系统 (例如,弗莱什-金凯德,SMOG).
- 评估的指标包括句子长度,单词复杂度和每单词的音节.
主要成果:
- 平均可读性得分为9.4,表明阅读水平略高于九年级.
- 弗莱什-金凯德阅读易度平均得分为46.4,被认为是"困难"或"大学水平".
- 关于赫施普朗格病的在线资源存在重大可读性挑战.
结论:
- 平均健康消费者依靠搜索引擎获取健康信息.
- 目前关于赫施普朗格病的在线资源对公众来说并不容易获得.
- 提高在线健康信息的可读性是为了更好地了解患者和家人的必要.
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