患者对骨折风险沟通的偏好:骨质疏松症风险沟通 (RICO) 研究
Charlotte Beaudart1,2,3, Mitali Sharma4, Patricia Clark5
1Department of Health Services Research, Care & Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands. charlotte.beaudart@unamur.be.
大多数患者希望了解骨折风险信息,但很少有人得到它. 他们更喜欢视觉,在线工具,并与医生讨论风险,以改善骨质疏松症护理.
科学领域:
- 骨质疏松症的研究研究.
- 患者沟通策略 患者沟通策略
- 健康风险感知健康风险感知
背景情况:
- 大多数患者希望了解骨折风险信息,但在提供信息方面存在重大差距.
- 骨质疏松症风险沟通 (RICO) 研究解决了这一未满足的需求.
研究的目的:
- 评估患者对沟通骨折风险信息的偏好.
- 确定有效的方法来传递与骨质疏松症相关的骨折风险.
主要方法:
- 在全球范围内,对332名患有骨质疏松症或被诊断患有骨质疏松症的妇女进行了结构化采访.
- 采访问题以系统文献审查和试点研究为依据.
主要成果:
- 只有56%的参与者收到了骨折风险信息,尽管他们认为这很重要.
- 在全球范围内,患者更喜欢视觉,交通灯风格的骨折风险图表 (FRAX®),而不是口头或书面格式.
- 患者对在线工具和与医疗保健专业人员讨论风险的兴趣非常强烈.
结论:
- 医疗保健提供者和患者之间存在大量的沟通缺口,涉及骨质疏松症骨折风险.
- 该RICO研究强调了患者喜欢的方法,包括视觉辅助和数字工具,以弥合这一差距.
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