患者对终止心脏起器治疗的看法 - - 在德国携带心脏起器的患者中进行的跨部门匿名调查
Irene Portig1, Elif Karaaslan1, Elena Hofacker1
1Research Group Medical Ethics, Faculty of Medicine, Philipps University of Marburg, 35043 Marburg, Germany.
Healthcare (Basel, Switzerland)
|November 14, 2023
概括
患者希望在植入之前了解节拍器退出情况,并参与生命终端决策. 了解心脏起器的依赖性可以减少生命末期的痛苦.
科学领域:
- 心脏病学 心脏病学
- 医学伦理 医学伦理
- 患者体验 患者体验
背景情况:
- 心脏起器治疗在老年患者中很常见.
- 关于心脏起器撤销的信息往往缺乏.
- 患者对终身护理的偏好至关重要.
研究的目的:
- 为了确定患者对止步器治疗的意见.
- 探索患者希望参与戒断决策的愿望.
- 识别有关心脏起器关闭的信息缺口.
主要方法:
- 跨截面匿名问卷. 跨截面匿名问卷.
- 在门诊和住院患者 (2021-2022) 中给心脏起器患者使用.
- 340名患者完成了调查.
主要成果:
- 大多数患者 (81岁的平均年龄,56%的男性) 对起器感到舒服,但缺乏戒断信息.
- 近三分之二的人希望在退出决定方面获得自主权.
- 大约60%的人希望在死亡期间关闭心脏起器,女性更愿意这样做.
结论:
- 患者希望尽早获得有关心脏起器退出,理想情况下是植入前的信息.
- 患者参与终身决策,包括心脏起器退出,是首选的.
- 讨论应该涵盖心脏起器的依赖,以减轻生命末期的痛苦.
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