患者对子宫内膜异位症诊断的经验:一种混合方法的方法
Elise Requadt1, Andrew J Nahlik1, Anna Jacobsen1
1Department of Anthropology, Washington University in St. Louis, St. Louis, Missouri, USA.
BJOG : an international journal of obstetrics and gynaecology
|November 14, 2023
概括
患有子宫内膜异位症的患者在诊断方面面临长时间的延迟,平均9.6年. 负面的医疗体验,特别是在青春期,是常见的,症状往往被医生驳回.
科学领域:
- 生殖健康 生殖健康
- 患者体验研究 研究研究
- 医学诊断 医学诊断 医学诊断
背景情况:
- 对子宫内膜异位症的诊断往往会显著延迟.
- 患者在寻求子宫内膜异位症的医疗保健方面的经验尚未完全理解.
研究的目的:
- 检查患者描述的子宫内膜异位症诊断经验.
- 调查诊断延迟和相关的医疗保健遭遇.
主要方法:
- 一项混合方法研究,利用通过患者领导的支持小组分发的在线调查.
- 分析了来自63个国家的2017年参与者的定量和质量数据.
- 主题分析确定了患者体验中的关键主题.
主要成果:
- 子宫内膜异位症的平均总诊断延迟时间为9.6年.
- 患者的平均寻求护理延迟为3.7年,与医疗保健相关的延迟为5.8年.
- 年龄较大的参与者 (35岁以上) 与年轻的参与者 (18-24岁) 相比,经历了更长的诊断延迟.
- 定性主题包括症状正常化,医生的解雇,以及基于患者特征的偏见.
结论:
- 患有子宫内膜异位症的患者报告了所有年龄组的负面医疗体验和显著的诊断延迟.
- 这些负面经历在青春期尤其普遍.
- 寻求护理和接受诊断的延迟凸显了子宫内膜异位症管理中的系统性问题.
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