头部和部淋巴和生活质量:患者的角度
Heather M Starmer1,2, Mary Gemma Cherry3, Joanne Patterson3,4
1Department of Otolaryngology - Head & Neck Surgery, Stanford University, 900 Blake Wilbur Drive, Palo Alto, CA, 94305, USA. hstarmer@stanford.edu.
概括
头部和部淋巴 (HNL) 严重扰乱了癌症幸存者的生活. 了解患者的体验是开发改善生活质量 (QoL) 和使日常生活正常化的工具的关键.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果
- 定性研究是指质量研究.
背景情况:
- 头部和部淋巴 (HNL) 是头部和部癌症 (HNC) 治疗后的常见并发症.
- HNL对患者生活质量 (QoL) 的影响需要更深入的探索.
研究的目的:
- 探索HNC幸存者与HNL的活着的经验.
- 收集洞察力,以开发HNL的患者报告的QoL测量.
主要方法:
- 进行了半结构化采访,与22名经历过HNC的HNC幸存者进行了采访.
- 采用定性内容分析来识别基于患者经验的主题.
主要成果:
- 确定了两个主要主题:"我想过我的生活"和"好像事情被短路了.
- 这些主题强调了HNL引起的深刻生活破坏以及患者对正常生活的渴望.
结论:
- 了解HNL对个体患者的影响对于优化治疗和改善QOL至关重要.
- 这项研究为患者报告的HNL QoL测量提供了基础,以提高以患者为中心的护理.
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