为晚期癌症患者开发和完善一个新的生命终端规划网站:一种混合方法方法
Casey A Walsh1, Jennifer Good2, Anas Ismaiel1
1Clinical Research Division, Fred Hutchinson Cancer Center, 1100 Fairview Ave N., Seattle, WA, 98109, USA.
概括
一个新的网站帮助晚期癌症患者计划生命末期的任务. 可用性测试显示了高的患者满意度和帮助度,为全面的数字死亡规划工具的未来改进提供了信息.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 数字健康数字健康
- 行为干预 发展 行为干预
背景情况:
- 对于晚期癌症患者来说,生命终端规划至关重要,但目前还没有全面的数字工具.
- 这种尚未满足的需求凸显了为患者及其亲人开发可访问的资源的重要性.
研究的目的:
- 开发和评估一个创新的网站的初步版本,旨在帮助晚期癌症患者进行终身计划.
- 解决患者和护理人员在准备生命末期任务时的综合需求.
主要方法:
- 与肥胖相关的行为干预试验 (ORBIT) 模型指导了开发过程.
- 可用性测试,包括"大声思考"练习和系统可用性量表,与10名患者和10名护理人员进行.
- 该网站在与Peacefully, Inc.的合作下进行了代改进,并纳入了参与者的反.
主要成果:
- 患者报告了网站的高可接受性 (平均得分24.7) 和可用性 (平均得分73.8).
- 护理人员表现出高的可用性 (平均得分为70.0) 和接近可接受的得分 (平均得分为22.9).
- 两组人都表示满意,并发现该工具很有帮助,建议改善信息安全和文本可读性.
结论:
- 该研究成功开发了一个为晚期癌症患者的初步生命终端规划网站.
- 结果将指导进一步的修改,以优化网站的整体终生准备.
- 这个数字工具有可能在关键生命阶段显著支持患者和护理人员.
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