纳入社区合作伙伴对电子健康技术数据共享实践的观点加州早期精神病干预网络:以用户为中心的设计方法进行定性焦点小组研究
Laura M Tully1, Kathleen E Nye1, Sabrina Ereshefsky1
1Department of Psychiatry and Behavioral Sciences, University of California, Davis, Sacramento, CA, United States.
JMIR human factors
|November 14, 2023
概括
在早期精神病 (EP) 护理中的道德数据共享需要以用户为中心的最终用户许可协议 (EULA). 透明的EULA和用户控制显著提高了客户,提供者和家庭成员之间数据共享的可接受性.
科学领域:
- 数字健康数字健康
- 心理健康技术 心理健康技术
- 精神病研究 精神病研究
背景情况:
- 电子健康技术越来越多地用于早期精神病 (EP) 识别和干预.
- 伦理数据使用实践对于用户对数字心理健康的信任和接受度至关重要.
- 用户数据推动了EP早期识别和干预的算法.
研究的目的:
- 探索社区合作伙伴对早期精神病 (EP) 护理中道德数据共享和最终用户许可协议 (EULA) 的观点.
- 开发一个以用户为中心的EULA协议,与社区合作伙伴的优先事项保持一致.
- 评估以用户为中心的EULA设计对数据共享意愿的影响.
主要方法:
- 对EP提供者,客户和家庭成员进行定性焦点小组研究.
- 对成绩单的内容分析,以确定数据共享偏好的关键主题.
- 以用户为中心的设计研讨会,以开发一个透明和可访问的EULA.
主要成果:
- 参与者意识到数据风险,但希望控制和透明度.
- 对数据共享的担忧被用户层面的控制和明确,可访问的EULA所缓解.
- 以用户为中心的EULA和选择过程在客户中实现了88.1%的数据共享协议率.
结论:
- 在数据共享方面,社区合作伙伴的优先事项 (客户,家庭,提供者) 是一致的.
- 将这些优先事项纳入EULA开发过程中,有助于加强自愿的数据共享.
- 以用户为中心的伦理数据实践是成功在心理健康领域实施eHealth的关键.
关键词:
我们的态度 态度 态度 态度 态度内容分析 内容分析分享数据的数据共享.电子健康 电子健康伦理学 伦理学聚焦小组是一个重点小组.卫生信息交换 卫生信息交换心理健康 心理健康这是一个前景,一个视角,一个视角.偏好 偏好 偏好精神错乱是一种精神病.一个精神病患者.定性数据是指质量数据.更多相关视频
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