评论:确定对智力和发育障碍者及其照顾者的经济因素:一个过程框架
John S Palatucci1,2, Sujoy Chakravarty1, Amy L Kratchman3
1Rutgers Center for State Health Policy.
Medical care
|November 14, 2023
概括
本评论提出了一个框架,收集有关影响智力和发育障碍 (I/DD) 个体及其照顾者的经济因素的数据. 它解决了数据缺口,以改善以人为中心的护理研究.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 卫生经济学 卫生经济学
- 关于残疾人的研究.
背景情况:
- 以患者为中心的结果研究信托基金 (PCORTF) 战略计划强调了在研究智力和发育障碍 (I/DD) 中的关键数据基础设施缺口.
- 需要收集有关影响I/DD患者及其照顾者的医疗保健决策的经济因素的数据,包括护理费用,收入损失和机会流失.
- 这些经济因素对以人为中心的医疗保健方法对I/DD患者产生了重大影响.
研究的目的:
- 提出一个框架,用于识别和运行与I/DD患者及其照顾者相关的经济因素.
- 为了支持PCORTF的响应能力,要求对I/DD的经济结果进行研究.
- 增强在I/DD研究中研究经济因素的数据能力.
主要方法:
- 概念化一个框架,以引起对经济因素的偏好.
- 解决数据收集和测量I/DD研究发展的障碍.
- 利用最近的方法学进步来诱导偏好.
主要成果:
- 拟议的框架旨在克服I/DD研究中的数据收集挑战.
- 它有助于制定与I/DD相关的经济成果的措施.
- 该框架旨在为在该领域发起项目的研究人员提供实用性.
结论:
- 这项工作提供了一个及时的框架,用于在研究I/DD患者的经济结果时建立数据能力.
- 该评论对研究人员计划和开发有关影响I/DD患者经济因素的项目有价值.
- 实施该框架支持I/DD个体的整合和社区维护.
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