寻求自闭症诊断的朝圣:对委内瑞拉父母经历的研究
Cecilia Montiel-Nava1, Irina Vargas2, Zoila Gonzalez-Avila3
1Department of Psychological Sciences, Universidad de Texas Rio Grande Valley, Edinburg, TX, USA.
Transcultural psychiatry
|November 15, 2023
概括
委内瑞拉的家长在获得自闭症诊断和服务方面面临重大挑战,原因是认识不足和资源有限. 文化信仰影响他们的旅程,突出了自闭症护理中的社会经济差异.
科学领域:
- 神经发育障碍 神经发育障碍
- 全球健康 全球健康
- 卫生社会学 卫生社会学
背景情况:
- 由于人口和系统差异,父母对自闭症诊断的经验在全球范围内各不相同.
- 自闭症谱系障碍 (ASD) 症状是多样化的,影响家庭经历.
研究的目的:
- 探讨委内瑞拉父母在孩子自闭症诊断后的生活经历.
- 了解父母的态度,挑战和对委内瑞拉自闭症儿童服务的看法.
主要方法:
- 应用了对20名委内瑞拉父母的定性数据的专题分析.
- 研究了家长的态度,发育迟缓的识别,服务获取,对健康/教育服务的信念,评估和看法.
主要成果:
- 委内瑞拉的家长报告说,自闭症意识普遍缺乏,学校系统缺乏支持.
- 尽管有全民医疗保健,但父母面临着稀缺的服务和漫长而昂贵的ASD诊断过程.
- 社会经济因素,文化价值观和精神信仰显著影响了父母的旅程和获得护理的机会.
结论:
- 委内瑞拉父母的自闭症诊断的道路往往是一个漫长的旅程,受限于有限的资源和知识.
- 文化和宗教信仰可以充当应对机制和障碍,阻碍自闭症儿童获得基本服务.
- 研究结果强调了社会经济因素对父母在获得自闭症诊断和支持方面的经验的影响.
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