锁定综合征中的沟通板:与患者的实用互动方法
Gabriel de Deus Vieira1, Zenóbio Cosme Gonçalves Ferreira1, Lucas Nóbrega1
1Universidade Federal de Santa Catarina, Departamento de Neurologia, Florianópolis SC, Brazil.
Dementia & neuropsychologia
|November 15, 2023
概括
为锁定综合症 (LIS) 患者开发适应的沟通板改善了沟通和幸福感. 根据患者的需求定制板.
科学领域:
- 神经学 神经学
- 康复医学 康复医学 康复医学
- 辅助技术 辅助技术 辅助技术
背景情况:
- 锁定综合症 (LIS) 是一种严重的神经疾病,导致完全和沉默,而意识保持完整.
- 有效的沟通对LIS患者来说是一个重大挑战,影响了他们的生活质量和治疗参与度.
- 现有的沟通方法可能不适合所有患者,尤其是那些教育程度较低或特定社会背景的患者.
研究的目的:
- 描述为被诊断患有锁定综合征的患者量身定制的沟通方法的开发和实施.
- 评估定制通讯板在增强患者-医疗服务提供者互动和整体幸福感方面的有效性.
- 分析在为LIS和不同教育水平的个人开发沟通工具时所需的挑战和适应.
主要方法:
- 创建两个通讯板,专门适应葡萄牙语.
- 由于患者的教育水平较低,最初的板设计面临挑战.
- 将第二个沟通板适应患者的社会环境,并将快捷方式用于健康查询.
主要成果:
- 调整后的沟通板显示,它对患者的治疗进展产生了积极的影响.
- 定制的方法有助于更好地沟通患者的身体和情绪状态.
- 干预显著改善了患者的生活质量.
结论:
- 量身定制的沟通板是改善锁定综合征患者沟通和生活质量的有效工具.
- 为成功实施,调整沟通策略以适应个别的教育和社会环境至关重要.
- 专门的沟通辅助工具的开发可以显著提高在严重的神经疾病患者的护理和福祉.
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