加拿大多发性硬化症护理合作伙伴之间的症状管理
Katherine L Cardwell1, Taylor A Hume1, Odessa J McKenna1
1From the Interdisciplinary School of Health Sciences (KLC, TAH, LAP), the Faculty of Medicine (OJMK), and the Brain and Mind Research Institute (LAP), University of Ottawa, Ottawa, ON, Canada.
International journal of MS care
|November 16, 2023
概括
多发性硬化症 (MS) 护理伙伴管理许多不可预测的症状,通常没有额外的帮助. 这些发现凸显了对面临复杂症状管理挑战的护理人员增加支持的需要.
科学领域:
- 神经学 神经学
- 护理工作研究 护理工作研究
- 公共卫生 公共卫生
背景情况:
- 管理多发性硬化症 (MS) 的多样性和不可预测的症状对非正式的护理人员来说是一个重大挑战.
- 护理伙伴经常与多发性硬化症症状呈现的异质性及其对日常生活的影响作斗争.
研究的目的:
- 描述由多发性硬化症护理伙伴管理的症状.
- 检查症状管理困难与其他护理职责之间的关系.
- 确定MS护理合作伙伴使用的补充支持来源.
主要方法:
- 一项在线调查对475名多发性硬化症护理伙伴的加拿大队列进行了管理.
- 收集的数据包括护理伙伴和接受者特征,症状流行率,管理困难和援助来源.
- 通过统计分析 (ANOVA,千二测试),根据症状管理难度等级对比组.
主要成果:
- 护理伙伴报告了中位数8个MS症状,疲劳,软弱和抑郁是最常见的.
- 平均6个症状被认为是难以管理的,特别是平衡/移动性问题,抑郁症和视力问题.
- 与低困难 (77.5%) 相比,高症状管理困难的护理伙伴报告获得额外帮助的可能性较低 (41.6%).
结论:
- 多发性硬化症的护理合作伙伴在管理各种各样的症状时面临着相当大的困难.
- 症状管理的负担很大,许多护理人员缺乏足够的补充支持.
- 旨在支持多发性硬化症护理伙伴的干预措施应解决症状管理的复杂性,并提供可访问的资源.
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