确定严重和复杂的儿科疾病的护理目标
Carrie M Henderson1, Renee D Boss2
1Department of Pediatrics, Center for Bioethics and Medical Humanities, University of Mississippi Medical Center, 2500 North State Street, Jackson, MS 39216, USA.
Pediatric clinics of North America
|November 16, 2023
概括
患有严重疾病的儿童的家庭在不确定性中进行复杂的医疗决策. 这篇文章提供了协调照顾目标的策略,改善这些儿童及其家人的生活质量.
科学领域:
- 儿科医学 儿科医学 儿科医学
- 家庭为中心的护理.
- 医疗保健的决策过程
背景情况:
- 越来越多的儿童患有长期严重/复杂疾病.
- 这些情况包括预后不确定性,广泛的医疗系统参与和功能限制.
- 家庭医疗技术对儿童和家庭的生活质量产生重大影响.
研究的目的:
- 识别在为患有严重疾病的儿童建立有凝聚力的护理目标方面存在的挑战.
- 为应对这些挑战提供实用策略.
- 支持家庭在复杂的医疗决策中进行导航.
主要方法:
- 这项研究综合了现有的文献和临床经验.
- 它分析了对照护理目标的共同威胁.
- 基于已识别的挑战,制定战略.
主要成果:
- 主要威胁包括预后不确定性,医疗责任分散以及个人家庭背景.
- 可以出现混合的护理目标,使决策更为复杂.
- 提出了具体的战略,以减轻这些威胁.
结论:
- 解决预后不确定性和澄清医疗责任至关重要.
- 调整讨论以适应个别家庭背景是非常重要的.
- 实施拟议的策略可以促进护理的凝聚力目标,提高生活质量.
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