与自闭症和相关发育障碍的研究前招聘相关的因素
Ashwin Karnik1, Gurjot Malhi1,2, Theodore Ho3
1Department of Psychiatry and Behavioral Sciences, University of Washington, 1959 NE Pacific St, Seattle, WA, 98195, USA.
Journal of autism and developmental disorders
|November 16, 2023
概括
自闭症研究参与的差异存在于招聘前阶段. 一个研究注册表偏爱英语发言者,白人和非西班牙裔种族,表明需要公平地接触各种自闭症社区.
科学领域:
- 自闭症谱系障碍研究研究
- 健康差异 在健康上的差异
- 临床试验招聘 临床试验招聘
背景情况:
- 获得研究计划对于改善不同人群的健康结果至关重要.
- 在城市的第三级自闭症中心建立了一个预招聘数据库,即研究注册表,以促进研究入学.
- 了解研究人员招聘的初始阶段的差异对于公平参与至关重要.
研究的目的:
- 检查自闭症中心在研究前招聘阶段的潜在差异.
- 为了比较在研究注册表中未注册的患者与已注册的患者的人口因素.
- 调查通过知情同意表 (ICF) 和研究兴趣表 (RIF) 招募的注册表参与者之间的人口差异.
主要方法:
- 在自闭症中心的患者和研究注册的注册者之间对人口因素的比较分析.
- 基于招聘方法 (ICF与RIF) 审查注册表内的人口差异.
- 患者特征的统计比较,包括语言,种族,种族,保险,收入和距离中心的距离.
主要成果:
- 总共有18522名患者被纳入; 有1092人在注册.
- 注册登记与英语作为主要语言,白人种族,非西班牙裔种族以及第一次诊所访问时的年龄较小有关.
- 与ICF组相比,在注册表中的RIF组显示了非英语主要语言,医疗补助保险,长途和较低收入的比例较高.
结论:
- 研究前招募阶段可能会出现差异,可能会限制多元化参与自闭症研究.
- 公平地传播研究机会是必要的,以实现自闭症和相关发育障碍的进展.
- 需要进一步努力,以确保各种人群能够接触到并参与研究.
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