直接面向消费者的基因测试和变化的性质细胞捐赠者受孕的格局:对于从业者和利益相关者来说,这是一个关键问题
Leah Gilman1, Caroline Redhead2, Nicky Hudson3
1Department of Sociological Studies, University of Sheffield, UK.
Reproductive biomedicine online
|November 17, 2023
概括
直接向消费者提供的基因检测 (DTCGT) 显著影响了关于配体供体受孕的信息的发现和共享. 这项技术改变了所有相关方的知识模式和家庭动态.
科学领域:
- 生殖医学 生殖医学
- 遗传学 遗传学 是一个
- 社会科学 社会科学 社会科学
背景情况:
- 直接向消费者进行基因测试 (DTCGT) 提供了对遗传倾向和祖先的见解.
- 它日益普及,引发了关于它对通过性球捐赠形成的个人和家庭的影响的问题.
- 了解这些影响对于导航复杂的家庭和信息景观至关重要.
研究的目的:
- 调查DTCGT对发现和传播有关异构体供体怀孕的信息的影响.
- 探索受捐赠者受孕和DTCGT影响的个人的经历,包括父母,捐赠者和捐赠者受孕的人.
- 确定DTCGT如何影响捐赠者受孕信息的管理和可访问性.
主要方法:
- 对60名受捐赠者受孕和DTCGT.影响的参与者进行了定性深度访谈.
- 参与者包括捐赠者,捐赠者怀孕的个人,父母和捐赠者的亲属.
- 采访发生在2021年9月至2023年2月期间,主要与英国居民进行.
主要成果:
- DTCGT正在重塑有关捐赠者受孕的知识,增加获取捐赠者相关信息的灵活性.
- 非专业人士,如家庭成员,在信息守门方面发挥着更大的作用.
- 捐赠者怀孕对捐赠者和捐赠者怀孕的个人亲属的影响被放大,影响了正式的信息系统.
结论:
- 生育专业人员必须教育个人关于DTCGT对捐赠者怀孕信息共享的影响.
- 对于那些应对DTCGT在捐赠者概念中引入的复杂性的人来说,支持系统是必要的.
- 积极的指导对于管理不断变化的捐赠者受孕信息环境至关重要.
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