社会耻辱及其与多发性硬化症患者生活质量的关系
Nader Sharifi1, Vahid Kohpeima Jahromi2, Razieh Zahedi3
1Department of Public Health, Khomein University of Medical Sciences, Khomein, Iran.
BMC neurology
|November 18, 2023
概括
社会耻辱会对患有多发性硬化症 (MS) 的人的生活质量产生负面影响. 身体健康和婚姻等因素对MS的生活质量产生积极影响,而疾病持续时间和角色限制则对其产生负面影响.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 心理社会研究 心理学研究
背景情况:
- 多发性硬化症 (MS) 是一种普遍存在的中枢神经系统疾病,严重影响患者的行为和生活方式.
- 了解社会耻辱对MS患者生活质量 (QoL) 的影响,对于有针对性的干预至关重要.
研究的目的:
- 调查多发性硬化症患者中社会耻辱的普遍性.
- 检查社会耻辱和MS患者的生活质量之间的关系.
主要方法:
- 一项涉及223名MS患者的横截面研究,来自伊朗的Jahrom MS协会 (2022).
- 通过人口统计,MS质量-54 (MSQOL-54) 和社会耻辱调查问卷收集的数据.
- 统计分析包括描述性统计,单变量和多变量线性回归.
主要成果:
- 在QoL和婚姻,身体健康,情绪健康,认知功能和健康困境之间发现了积极的相关性.
- 在QoL和疾病持续时间,身体/情感角色限制,疼痛,能量,健康感知,社会功能,性功能和社会耻辱之间发现了负相关性.
- 社会耻辱表明与MS患者的生活质量有显著的负面关系.
结论:
- 多发性硬化症症状和疾病的严重程度与生活质量下降有关.
- 婚姻,身体健康和健康困境对QoL产生积极影响,而疾病持续时间,角色限制和社会耻辱对其产生负面影响.
- 精神和心理因素似乎比身体限制对MS患者的生活质量产生更大的影响.
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