黑人和西班牙裔人口的多发性硬化症:为欠缺的服务
Mitzi J Williams1, Christopher Orlando2, Jemima Akisanya3
1Joi Life Wellness Multiple Sclerosis Center, 767 Concord Road, SE, Smyrna, GA 30082, USA.
Neurologic clinics
|November 18, 2023
概括
多发性硬化症 (MS) 影响黑人和西班牙裔人口比以前想象的要多,往往具有更严重的疾病过程. 了解遗传学和健康的社会决定因素之间的相互作用对于个性化护理和减少健康差异至关重要.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 健康差距 研究 研究 研究 研究
背景情况:
- 历史上,多发性硬化症 (MS) 被视为一种主要影响年轻,欧洲血统女性的疾病.
- 新出现的证据显示,黑人和西班牙裔人口中MS的发病率和流行率显著更高.
- 这些人群可能会经历更严重的疾病过程,突出了关键的知识差距.
研究的目的:
- 为了强调MS临床研究中不同人群的代表性不足.
- 强调需要进行研究,探讨MS中遗传因素和健康的社会决定因素 (SDOH) 的交叉.
- 倡导解决多发性硬化症健康差异的战略.
主要方法:
- 对不同人口群体中MS发病率和流行率的最新流行病学研究的审查.
- 分析现有的有关不同人群疾病严重程度的文献.
- 检查健康的社会决定因素和MS的遗传基因的作用.
主要成果:
- 在黑人和西班牙裔社区,多发性硬化症的发病率和患病率被明显低估.
- 有证据表明,在这些人群中,疾病的进展更为激烈.
- 临床研究中显著缺乏多样性,阻碍了在所有人群中全面了解MS.
结论:
- 解决MS的健康差异需要一个多方面的方法,涉及各种利益相关者.
- 改善健康的社会决定因素对于公平的MS护理至关重要.
- 提高对研究的认识和参与对于制定个性化医疗保健计划和有效打击MS至关重要.
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