在他们自己的声音;生活与Hidradenitis Suppurativa:一个定性研究
Nihan Durgu1, Erol Ozan, Gulsum Gencoglan
1At Manisa Celal Bayar University, Manisa, Turkey, Nihan Durgu, PhD, is Assistant Professor, Department of Mental Health Nursing, Faculty of Health Sciences; Erol Ozan, MD, is Associate Professor, Department of Psychiatry, School of Medicine; and Gulsum Gencoglan, MD, is Professor, Department of Dermatology, School of Medicine. Acknowledgment: The authors thank the patients who took the time to talk about their experiences. The authors have disclosed no financial relationships related to this article. Submitted November 7, 2022; accepted in revised form January 20, 2023.
患有补性腺炎的患者会经历严重的,无休止的症状,这些症状会显著影响他们的日常生活. 这种慢性炎症状况需要进一步的支持和潜在的精神治疗对受影响的个人进行干预.
科学领域:
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
- 定性研究是一种定性研究.
背景情况:
- 补腺炎 (HS) 是一种慢性炎症性皮肤疾病.
- HS的特点是经常出现,鼻和痕,严重影响生活质量.
研究的目的:
- 探索患有补充性腺炎的个体的生活经历.
- 为了更深入地了解HS患者所面临的日常挑战.
主要方法:
- 使用了定性现象学方法.
- 进行了半结构化的深度访谈,对10名有意抽样的参与者进行了深度访谈.
- 解释性现象学分析 (IPA) 用于数据解释.
主要成果:
- 出现了两个总体主题:"无休止的症状"和"生活变得艰难".
- 参与者描述了持续和衰弱的症状.
- 这种情况深深地影响了多个生命领域.
结论:
- 补性腺炎的症状严重影响患者的家庭,职业和日常生活.
- 这些发现表明需要全面的患者支持.
- 精神病学干预对于管理HS的个人可能是有益的.
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