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在线环境中使用观察方法探索研究参与的结果

Deborah A Marshall^1,2, Nitya Suryaprakash³, Danielle C Lavallee^3,4,5

¹Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada damarsha@ucalgary.ca.

|November 21, 2023

概括

患者参与定性研究对研究设计和交付产生积极影响. 患者主导和研究人员主导的两组都表现出成功的合作和有意义的结果,突出了患者研究伙伴的价值.

科学领域:

医疗保健服务研究医疗服务研究
定性研究方法定性研究方法
患者和公众参与.

背景情况:

患者参与 (PE) 越来越被认为是定性研究的关键.
了解PE在不同研究结构中的具体结果对于优化合作努力至关重要.
本研究探讨了PE在两个不同的定性研究组.

研究的目的:

探索患者参与定性研究的结果.
为了比较患者领导小组 (PLG) 与研究人员领导小组 (RLG) 的动态和结果.

主要方法:

两个在线小组 (PLG和RLG) 在炎症性肠病中进行了定性偏好探索项目.
参与者包括患者,临床医生和研究人员.
分析基于会议记录,观察和电子邮件通信,以半结构面试指南和研究参与的关键结果为指导.

主要成果:

这两个项目都是以患者为中心,协作,有意义,严谨,适应,道德,合法,可理解,可行,及时和可持续的.
患者研究合作伙伴 (PRP) 在顾问和运营角色中积极影响项目决策.
在PLG中,合作似乎更顺利,而RLG的PRP则为定义研究问题做出了重大贡献.

结论:

通过患者研究合作伙伴 (PRP) 参与患者参与,积极影响定性研究设计和交付.
患者主导和研究人员主导的模型都可以通过积极参与PRP实现有意义和成功的研究成果.
作为患者和研究人员的PRP的双重作用是项目成功的关键因素.

关键词:

成年人胃肠道学胃肠道学胃肠道学卫生经济学卫生经济学炎症性肠病是一种炎症性肠病.患者参与患者参与质量研究质量研究

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