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慢性疹病患者的患者宪章
Marcus Maurer1,2, Mónica Albuquerque3, Jean-Nicolas Boursiquot4
1Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Advances in therapy
|November 22, 2023
概括
慢性疹 (CU) 影响生活质量和医疗保健成本. 患者宪章概述了5个准确诊断,专业护理,创新治疗,最小副作用和慢性的整体管理的原则.
科学领域:
- 皮肤病学 皮肤病学
- 免疫学 免疫学 免疫学
- 公共卫生 公共卫生
背景情况:
- 慢性疹 (CU) 影响全球1.4%,其特点是持续超过6周的反复发/血管.
- 消化剂显著损害日常活动,睡眠和生活质量,给患者和医疗保健系统带来财务负担.
- 患者自我倡导和改善沟通对于有效的CU诊断和管理至关重要.
研究的目的:
- 引入一个患者宪章,概述最佳慢性疹病护理的5个核心原则.
- 为了使患者能够在他们的CU诊断和治疗过程中进行导航.
- 为医疗保健提供者,政策制定者和指南作者提供指导,以改善慢性疹患者的治疗结果.
主要方法:
- 一项涉及患者,医疗服务提供者,倡导团体和制药公司代表的合作努力.
- 制定一份详细介绍慢性疹患者预期护理的5个关键原则的患者宪章.
- 传播指导患者提供者沟通和医疗保健政策的原则.
主要成果:
- 患者宪章确立了5个原则:及时诊断,获得专业护理,创新治疗,尽量减少副作用和整体护理.
- 这些原则旨在改善患者与医疗服务提供者之间的沟通,并加强慢性疹病的整体管理.
- 该宪章是实现CU护理中以患者为中心的目标的框架.
结论:
- 患者宪章为实现慢性疹患者的现实和可实现的护理标准提供了路线图.
- 实施这些原则可以带来更好的患者-医生沟通和更好的结果.
- 敦促政策制定者和指导方针作者考虑这些以患者为中心的原则,对于推进CU管理至关重要.
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