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优先考虑与罕见疾病利益相关者相关的研究:系统审查和专题分析

Soho Yoon1, Minjee Lee2, Hoi-In Jung3

  • 1Asian Institute for Bioethics and Health Law, Yonsei University, Seodaemun-gu, Seoul, Republic of Korea.

Orphanet journal of rare diseases
|November 24, 2023
PubMed
概括

关于罕见疾病 (RD) 利益相关者的研究突出了未得到满足的需求和挑战. 提高公众意识和支持对于增加投资和治疗罕见疾病的发展至关重要.

关键词:
护理人员 护理人员医疗保健专业人员 医疗保健专业人员患者 患者 患者 患者政策 政策 政策 政策提供政治支持.公共资金是公共资金.罕见疾病是一种罕见的疾病.利益相关者 利益相关者调查 调查 调查 调查

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