验证葡萄牙语版本的硬化皮肤病健康评估问卷
Inês Genrinho1,2, Pedro L Ferreira3, Tânia Santiago4
1Rheumatology Department, Tondela Viseu Hospital Centre, 3504-509 Viseu, Portugal.
International journal of environmental research and public health
|November 24, 2023
概括
欧洲葡萄牙语版的"硬化皮质HAQ" (SHAQ) 是一种可靠和有效的工具,用于评估患者的全身性硬化症 (SSc) 障碍.
科学领域:
- 类风湿病学 类风湿病学
- 临床评估 临床评估
- 患者报告的结果
背景情况:
- 系统性硬化症 (SSc) 显著影响患者的生活质量.
- 准确和验证的工具对于评估SSc残疾至关重要.
- 健康评估问卷残疾指数 (HAQ-DI) 是一个广泛使用的指标,但其适应特定人群至关重要.
研究的目的:
- 为SSc患者验证欧洲葡萄牙语版的硬化皮肤病HAQ (SHAQ).
- 在现实临床环境中评估葡萄牙SHAQ的可靠性和有效性.
主要方法:
- 这项研究涉及来自五个医院中心的102名SSc患者.
- 使用内部一致性 (克朗巴赫α) 和测试重试可靠性 (ICC) 来评估可靠性.
- 通过内容,构造和标准测量来评估有效性,包括与SF-36v2和EuroQoL EQ-5D-5L的相关性.
主要成果:
- 葡萄牙的SHAQ表现出高的内部一致性 (α = 0.866) 和良好的测试-重新测试可靠性 (ICC 0.61-0.95).
- 标准的有效性得到了HAQ-DI和SF-36v2物理总结 (r = -0.688) 和EQ-5D-5L指数 (r = -0.723) 之间的显著相关性.
- SHAQ的整体疾病严重程度VAS也与SF-36v2物理总结测量 (r = -0.628) 相关性良好.
结论:
- 欧洲葡萄牙语版本的SHAQ是从患者的角度评估SSc临床严重性的可靠和有效工具.
- 这种经过验证的工具可以有效地用于临床实践和涉及葡萄牙语SSc患者的研究.
- 这些发现支持使用SHAQ用于以患者为中心的系统性硬化症结局评估.
相关概念视频
01:23Assessment of the Cardiovascular System I: Subjective Data
343
A thorough health history and physical assessment are essential for identifying cardiovascular disease (CVD) symptoms and distinguishing them from other health issues.
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
343
01:23Assessment of blood pressure in brachial artery(two-step method)
716
Measuring blood pressure is a fundamental skill in healthcare that aids in diagnosing and monitoring hypertension and other cardiovascular conditions. An aneroid sphygmomanometer, commonly used in clinical settings, offers a manual and precise method for blood pressure measurement. The technique for using this instrument involves specific steps that must be carefully executed to ensure accuracy. The following detailed description outlines a two-step technique for assessing blood pressure using...
716
01:29Assessment of the Cardiovascular System II: Inspection
266
Inspection is the initial step in assessing the cardiovascular system. It involves a detailed visual examination that provides crucial information about a patient's circulatory and cardiac health. This systematic process, conducted from head to toe, helps identify signs of cardiovascular conditions by observing physical appearance, skin and mucous membranes, jugular and carotid pulsations, chest symmetry, and the condition of the extremities.
Head and Neck
Head and Neck
266
01:29Assessment of the Gastrointestinal System II: Health Perception Pattern
121
Assessing the gastrointestinal (GI) system is a complex process that begins with collecting subjective data. This data, collected through patient interviews, provides crucial insights into the patient's health history, perception patterns, and lifestyle habits, all contributing significantly to GI health.
Health Perception Patterns
Health perception patterns offer valuable insights into a patient's lifestyle habits and how they may impact their GI health. These patterns include:
Health Perception Patterns
Health perception patterns offer valuable insights into a patient's lifestyle habits and how they may impact their GI health. These patterns include:
121
01:27Assessment of the Cardiovascular System III: Palpation
347
Palpation involves feeling the body to evaluate texture, size, consistency, and tenderness for assessing cardiovascular health. The following steps are organized in a head-to-toe order:
Jugular Venous Pressure (JVP) Measurement
Position the patient at a thirty- to forty-five-degree angle or in a semi-fowler's position. Look for the highest point of pulsation in the internal jugular vein and measure the vertical distance to the angle of Loius or sternal angle. A normal JVP is 3-4 cm above...
Jugular Venous Pressure (JVP) Measurement
Position the patient at a thirty- to forty-five-degree angle or in a semi-fowler's position. Look for the highest point of pulsation in the internal jugular vein and measure the vertical distance to the angle of Loius or sternal angle. A normal JVP is 3-4 cm above...
347