关于新生儿研究的学习经验和偏好:来自家长采访的见解
Elliott Mark Weiss1,2, Kathryn M Porter3, Ellie Oslin3
1Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA, USA. emweiss@uw.edu.
概括
父母希望他们的临床团队在被问及新生儿研究时更多地参与其中. 了解父母的情绪和与工作人员的关系是改善婴儿参与研究的关键.
科学领域:
- 新生儿研究新生儿研究
- 临床试验招聘工作人员
- 父母的参与是父母的参与.
背景情况:
- 父母经常在参与新生儿研究的请求中扎.
- 以前的研究忽视了少数民族,低社会经济地位和衰退的父母的观点.
- 了解父母的偏好对于道德和有效的参与研究至关重要.
研究的目的:
- 描述家长对了解新生儿研究资格的偏好.
- 确定影响家长关于新生儿研究入学决定的因素.
主要方法:
- 进行了与父母进行的定性访谈,他们被要求参加婴儿新生儿研究.
- 利用内容分析来识别父母体验和偏好的主题.
主要成果:
- 父母表示希望他们的临床护理团队更多地参与.
- 招聘期间的情绪状态显著影响了父母的经验.
- 与研究人员的人际关系至关重要.
结论:
- 加强临床团队的参与可以改善新生儿研究招聘.
- 在招聘时,对父母和婴儿压力因素的更大敏感性是必不可少的.
- 专注于人际关系和沟通可以促进信任和参与.
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