我们如何处理共享儿童照顾者PRO的分歧
Amy S Porter1, Pamela S Hinds2,3, Lori Wiener4
1Division of Supportive and Palliative Care, Mass General for Children, Boston, Massachusetts, USA.
Pediatric blood & cancer
|November 27, 2023
概括
儿童癌症患者和护理人员经常以不同的方式报告症状. 这项研究为临床医生提供了沟通策略,以讨论这些患者报告的结果 (PRO) 差异,改善治疗期间的家庭支持和和.
科学领域:
- 儿科瘤学 儿科瘤学
- 患者报告的结果
- 家庭沟通 家庭沟通
背景情况:
- 患者报告结果 (PRO) 对于评估儿科癌症患者的体验至关重要.
- 儿童和护理人员报告的症状和功能之间存在差异是常见的.
- 临床医生在向家庭传达这些PRO差异时面临挑战.
研究的目的:
- 为儿童癌症患者及其护理人员之间讨论PRO分歧提供策略和语言.
- 支持临床医生管理和沟通症状和功能状态差异.
- 在儿童癌症治疗期间增强家庭沟通和和.
主要方法:
- 对儿科瘤学中PROs现有文献的综述.
- 分析症状和功能报告中不同意见的常见来源.
- 为临床医生开发沟通框架和样本语言.
主要成果:
- 儿童和护理人员对症状负担和功能状态的看法经常有所不同.
- 对PRO差异的公开讨论可以减轻临床医生的担忧,改善家庭动态.
- 有效的沟通策略对于以患者为中心的护理至关重要.
结论:
- 解决PRO分歧对于整体的儿科癌症护理至关重要.
- 临床医生需要实用工具来促进敏感的谈话患者报告的结果.
- 改善沟通可以积极影响儿童癌症患者及其家属的福祉.
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