基于网络的鼻癌患者信息的可读性和质量:定量内容分析
Denise Jia Yun Tan1, Tsz Ki Ko1, Ka Siu Fan2
1Department of Surgery, Royal Stoke University Hospital, Stoke on Trent, United Kingdom.
JMIR formative research
|November 27, 2023
概括
在线关于鼻癌 (NPC) 的信息往往难以理解,质量不一致. 提高网络内容的可访问性和可靠性对于寻求有关这种罕见癌症的信息的患者至关重要.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
背景情况:
- 鼻癌 (NPC) 是一种罕见的恶性瘤,与爱斯坦-巴尔病毒有关.
- 由于瘤的位置和非特异性症状,早期NPC诊断具有挑战性,往往导致晚期检测.
- 可访问,高质量的信息可以帮助早期检测和患者支持.
研究的目的:
- 评估NPC.英语在线信息的质量和可读性.
- 使用主要搜索引擎分析基于网络的NPC资源.
主要方法:
- 搜索谷歌,雅虎和Bing的NPC相关术语,分析每个引擎的前25个结果.
- 不包括非英语,付费墙,专业定向或非文本内容.
- 通过Flesch阅读方便和Flesch-Kincaid等级水平评估可读性.
- 使用JAMA和DISCERN工具评估网站质量,并检查网络健康基金会的印章.
主要成果:
- 分析了57个网站;26%是学术网站.
- 平均的JAMA和DISCERN分数表明质量不足于最佳.
- 学术和医疗保健行业的网站通常得分更高.
- 平均可读性相当于14.3年的阅读水平,超过了推的六年级水平.
- 只有一个网站拥有"网络健康基金会"的印章.
结论:
- 关于NPC的互联网信息不一致,质量不佳.
- 可读性是一个重要的问题,内容往往超过推水平.
- 需要提高网络内容的质量和可访问性.
- 医疗保健提供者必须仔细选择可靠和可读的资源为患者.
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