在儿科息护理中,家长护理人员的心理经验评估协议
Alexandra Jóni Nogueira1, Maria Teresa Ribeiro1
1CICPSI, Faculty of Psychology, University of Lisbon, Alameda da Universidade, Lisboa, Portugal.
Annals of medicine
|November 27, 2023
概括
这项研究提出了一项新的方案,以评估照顾接受儿科息护理 (PPC) 的儿童的父母的心理经验. 该协议有助于确定家庭的需求,并为增强福祉和弹性提供量身定制的支持.
科学领域:
- 心理学 心理学 心理学
- 儿科 儿科 儿科
- 家庭研究 家庭研究
背景情况:
- 儿科息治疗 (PPC) 在葡萄牙正在扩大,支持超过7800名患有生命限制疾病的儿童.
- 照顾这些孩子给家庭带来了复杂的挑战,需要专注于父母护理人员的支持.
- 现有的研究往往强调父母在PPC环境中的适应.
研究的目的:
- 介绍和详细介绍一项用于评估参与儿科息护理的家长心理经验的新方案.
- 提供一个结构化的方法,以了解父母在PPC中面临的多方面的挑战.
- 为了促进特定需求的识别,并为PPC的家庭提供治疗干预措施.
主要方法:
- 评估协议结合了社会人口统计和临床问卷.
- 一个半结构化的采访利用"不想要的客人隐喻"指导叙事探索.
- 该方法旨在为个人和远程应用而设计.
主要成果:
- 该协议从父母的角度探讨了父母经验的10个关键维度.
- 这些维度包括诊断对抗,疾病表现,情感影响,日常挑战和家庭影响.
- 额外的维度包括资源,社会支持,应对策略,创伤后成长,儿童代表和未来前景.
结论:
- 开发的协议为PPC的研究和临床实践提供了一个全面的工具.
- 它可以识别独特的家庭需求,并建立量身定制的心理治疗目标.
- 通过生态系统方法,该协议的应用可以增强家长的福祉和家庭的弹性.
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