与多发性硬化症患者感知到的社会支持相关的因素
Aikaterini Papa1, Ioannis Koutelekos1, Spyridoula Stefanidou1
1Department of Nursing, University of West Attica, Athens, Greece.
Current journal of neurology
|November 27, 2023
概括
患有多发性硬化症 (MS) 的患者从家庭和重要他人那里感受到高度的社会支持,但从朋友那里感受到的不那么多. 了解这些因素对于全面的MS护理至关重要.
科学领域:
- 神经学 神经学
- 社会科学 社会科学 社会科学
- 心理学 心理学 心理学
背景情况:
- 多发性硬化症 (MS) 是一种慢性,炎症性中枢神经系统疾病.
- 多发性硬化症的特征是不可预测的进展和日益增长的残疾.
- 对于患有多发性硬化症的人来说,社会支持是一个重要的人际关系资源.
研究的目的:
- 评估MS患者感知到的社会支持.
- 确定与MS患者的社会支持相关的因素.
主要方法:
- 与200名多发性硬化患者进行的横截面研究.
- 使用了感知社会支持的多维尺度 (MSPSS).
- 通过问卷收集患者特征的数据.
主要成果:
- 感知到来自重要他人和家庭的高度支持;来自朋友的支持较低.
- 与婚姻状况,日常活动修改,社会/家庭困难,尿道问题,记忆力,焦虑和宗教性相关的社会支持.
- 家庭的支持与卫生专业关系,社会/家庭环境困难,焦虑和宗教性有关.
- 朋友的支持与日常活动的修改,日常援助,移动需求,社会/家庭环境困难和焦虑有关.
结论:
- 对于MS患者来说,社会支持的感知有所不同.
- 影响社会支持的因素包括人口统计,日常运作和心理状态.
- 对于MS患者的整体护理规划必须考虑相关的社会支持因素.
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