试图通过自愿停止饮食来加速死亡的患者:一种定性研究
Eva Elizabeth Bolt1, H Roeline Pasman2, Bregje D Onwuteaka-Philipsen2
1Amsterdam UMC, Amsterdam, The Netherlands Ee.bolt@amsterdamumc.nl.
Annals of family medicine
|November 27, 2023
概括
自愿停止饮食 (VSED) 是患者自主决定的生命终结选择. 这项研究确定了三个不同的患者群体,对VSED的需求和准备方法各不相同.
科学领域:
- 生命周期末期的研究.
- 抚慰性护理研究研究
- 健康社会学健康的社会学.
背景情况:
- 自愿停止饮食 (VSED) 是一个有争议的生命终结实践.
- 对于患者的动机和对VSED的决策过程的理解有限.
研究的目的:
- 调查VSED背后的动机.
- 探索患者如何决定VSED.
- 了解VSED的准备方法和社会参与.
主要方法:
- 在荷兰进行的定性研究.
- 包括29名患者 (24名启动VSED,19人死亡).
- 通过采访患者,亲属和护理人员收集的数据;使用诱导型理想类型分析进行分析.
主要成果:
- 出现了三种不同的患者类型: 1) 已完成生命的老年人重视控制, 2) 较老的依赖护理的患者生活质量差, 3) 年轻的精神病患者死亡愿望波动.
- 患者群体在准备,决策和依赖护理人员方面存在差异.
- 一些患者忽视了对亲属的情感影响,或者秘密准备.
结论:
- 选择VSED的患者代表了一个多元化的群体,有着不同的护理需求.
- 对VSED的终身护理指南必须适应这些不同的患者需求.
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