状细胞贫血患者的心理社会挑战:一个叙事审查
Emmanuel Aniekan Essien1, Blessing F Winter-Eteng1, Chinyere Uchechi Onukogu1
1Research and Training Unit, Federal Neuropsychiatric Hospital.
Medicine
|November 28, 2023
概括
状细胞贫血 (SCA) 显著影响生活质量,导致心理健康问题,睡眠问题和歧视. 综合护理对于解决这些患者和家人的心理社会挑战至关重要.
科学领域:
- 血液学 血液学 血液学
- 心理学 心理学 心理学
- 公共卫生 公共卫生
背景情况:
- 状细胞贫血 (SCA) 是一种严重的遗传性血液疾病,具有重大的全球健康影响.
- 它不成比例地影响某些人群,并导致大量的发病率,死亡率和心理社会痛苦.
研究的目的:
- 综合当前关于SCA患者及其家人面临的心理社会挑战的研究.
- 确定关键的困难领域,并推综合护理策略.
主要方法:
- 在Ovid Medline和公共数据库上进行了初步文献搜索.
- 368篇文章被确定,选和分析,使用三个研究人员的叙事合成方法.
主要成果:
- 精神障碍 (抑郁,焦虑),睡眠障碍,耻辱化和工作场所歧视是普遍存在的心理社会问题.
- 家庭经历了心理压力,经济压力和社会混乱.
- 治疗不良,疼痛增加和失业与这些挑战有关.
结论:
- 综合医疗整合心理健康服务,患者/家庭教育和增强疼痛管理至关重要.
- 早期干预,基于学校的支持,倡导和社区团体可以改善结果.
- 解决心理社会困境对于改善SCA患者生活至关重要.
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