描述ARVC的决策环境演习:决策冲突,决策遗憾和共享决策的分析
Jessica Sweeney1,2, Crystal Tichnell3, Susan Christian4
1Johns Hopkins Bloomberg School of Public Health (J.S., D.L.R.), Johns Hopkins University, Baltimore.
在心律失常性右室心肌病 (ARVC) 中,共享决策 (SDM) 减少了关于运动的决策冲突和遗憾. 这种方法在诊断后不改变运动强度的情况下支持患者.
科学领域:
- 心脏病学 心脏病学
- 遗传学 遗传学 是一个
- 患者的决策制定 患者的决策
背景情况:
- 由于心律失常和疾病进展的风险,心律失常性右室心肌病 (ARVC) 需要限制运动.
- 目前的指导方针建议在ARVC患者的运动管理中使用共享决策 (SDM),但对其影响的证据有限.
研究的目的:
- 评估SDM对ARVC患者和风险亲属的运动决定,决策冲突和决策遗憾的程度和影响.
主要方法:
- 一项基于问卷的研究调查了在约翰霍普金斯ARVC注册表中诊断出ARVC或具有阳性基因检测的成年人.
- 参与者报告了运动史,目前的运动,SDM,决策冲突和决策遗憾.
主要成果:
- 在诊断时或诊断后,观察到决策冲突 (68.0%) 和遗憾 (55.3%) 的高率.
- SDM的程度有显著的变化,青少年报告SDM更高.
- SDM显著与减少决策冲突和遗憾有关,但与诊断后运动强度的变化无关.
结论:
- 共享决策 (SDM) 与减少ARVC患者的决策冲突和对运动的遗憾有关.
- SDM不会影响诊断后的炼强度,支持其作为ARVC炼讨论的首选模型的采用.
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