在癌症化疗期间支持数字健康服务:单臂前后可行性研究
Nanna Fridriksdottir1,2, Brynja Ingadottir1,2, Kristin Skuladottir1
1Landspitali- The National University Hospital of Iceland, Reykjavik, Iceland.
JMIR formative research
|November 28, 2023
概括
这项研究表明,数字癌症护理门户是可行的,可以通过加强症状监测和参与来改善患者的治疗结果. 建议在瘤学中进一步开发最佳的数字支持性护理.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 医疗信息学 医疗信息学
背景情况:
- 数字支持性癌症护理对于改善患者治疗结果至关重要.
- 一个新的门户被整合到冰岛的电子病历和公共卫生系统中.
- 该门户提供症状/需要监测,教育资源和安全消息传递.
研究的目的:
- 评估数字支持门户的可行性,包括采用,参与,可用性和可接受性.
- 确定门户可用性和患者接受性的预测因素.
- 评估门户对患者报告结果的潜在影响.
主要方法:
- 在一所大学医院进行了一项单臂前后可行性研究.
- 接受化疗的患者使用该门户进行症状评估 (ESASr,DT&PL),教育和消息传递.
- 测量了可用性 (系统可用性量表) 和可接受性 (35项调查),以及各种患者报告的结果.
主要成果:
- 该门户显示出良好的可行性,采用率为72%,使用率为76.7%.
- 可用性 (平均得分72.3) 和可接受性 (平均得分3.97) 是有利的,受年龄和参与等因素的影响.
- 在总症状困扰,身体和情绪症状,生活质量和健康参与方面观察到显著改善.
结论:
- 数字支持门户是癌症护理的可行性,并显示了改善患者治疗结果的潜力.
- 虽然令人鼓舞,但需要进一步开发以优化门户网站的有效性.
- 医疗保健专业人员认为该门户是积极的,但要求对角色和后续行动提供更明确的指导方针.
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