疾病感知在心力衰竭中延迟寻求护理中的作用:一项混合方法研究
Serra E Ivynian1, Caleb Ferguson2, Phillip J Newton3
1Improving Palliative, Aged and Chronic Care through Clinical Research and Translation (IMPACCT), Faculty of Health, University of Technology Sydney, Australia.
患有心力衰竭的患者通常因不清楚的疾病感知而难以自我管理症状. 了解这些感知和情绪反应是赋予患者更好的健康控制权的关键.
科学领域:
- 心脏病学 心脏病学
- 心理学 心理学 心理学
- 健康 行为 健康行为
背景情况:
- 在心力衰竭 (HF) 管理中,不清楚的疾病感知很普遍.
- 自律模型解释了个人如何应对慢性疾病.
- 这种模型可以阐明感知和低于最佳的高频自我管理之间的联系.
研究的目的:
- 检查疾病感知在应对反应中的作用,导致对HF症状的延迟寻求护理.
- 应用疾病行为的自我调节模型来理解HF患者的经验.
- 研究患者如何感知心力衰竭及其随后的寻求护理行为之间的联系.
主要方法:
- 进行了一项混合方法的现象学研究.
- 72名HF患者完成了简要的疾病感知问卷.
- 15名患者参加了半结构面试,探索寻求护理的决定.
主要成果:
- 患者报告说,他们对心力衰竭的个人控制能力很低.
- 疾病归因集中在生活方式因素 (饮食,活动) 上.
- 认知失调和情绪反应导致了症状的回避和否认.
结论:
- 自律模型为理解高压患者行为提供了一个框架.
- 患者的感知和情绪反应显著影响疾病应对.
- 赋予患者权力,使价值观与行为保持一致,对于最佳的症状自我管理至关重要.
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