与异常发炎性肌肉病相关的个人财务负担
Catherine Hua1, Abhiram R Bhashyam2, Manuel Lubinus3
1Department of Orthopaedics, Harvard Medical School, Massachusetts General Hospital, Boston, MA, USA.
Neuromuscular disorders : NMD
|November 28, 2023
概括
异形性炎症性肌肉病变 (IIM) 对美国的患者造成了巨大的经济负担. 诸如医疗补助和高扣除保险等因素增加了财务担忧,影响了患者的护理.
科学领域:
- 类风湿病学 类风湿病学
- 卫生经济学 卫生经济学
- 患者倡导 患者倡导
背景情况:
- 异形性炎症性肌肉病变 (IIM) 是一组罕见的自身免疫性疾病,具有大量的医疗利用率.
- 国际医学院对美国医疗保健系统患者的个人经济影响在很大程度上仍未得到量化.
- 了解财务负担对于全面的患者管理和支持至关重要.
研究的目的:
- 调查和量化美国被诊断患有IIM的患者所经历的个人财务负担.
- 确定与IIM患者财务担忧和负担增加相关的特定的人口和保险相关因素.
- 为医疗保健提供者提供有关患者面临的财务挑战的信息,以改善治疗策略.
主要方法:
- 一项调查分发给肌肉炎支持和理解 (MSU) 的成员,有470名参与者自我报告IIM诊断.
- 经过验证的工具,包括金融担忧评分和金融负担综合评分 (FBCS),用于评估经济影响.
- 使用后勤和波松回归分析来确定与更高的FBCS和财务担忧相关的因素.
主要成果:
- 很大一部分 IIM 患者 (43%) 报告了高度的财务担忧.
- 平均金融负担综合评分 (FBCS) 为1.8±1.9.
- 与没有医疗补助的患者相比,有医疗补助的患者对财务担忧的几率高出3.016倍.
- 拥有私人高自扣保险的参与者,财务担忧的可能性增加了3.216倍.
结论:
- 医院患者面临相当大的个人财务困难,受医疗费用和保险类型的影响.
- 医疗补助 (Medicaid) 接受者和那些拥有高扣除额度私人保险的人特别容易陷入财务困境.
- 医疗保健提供者应将财务评估纳入患者护理计划,以减轻经济困难并改善结果.
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