在中央癌症登记处的患者种族和种族数据的准确性
Rachel R Codden1,2, Carol Sweeney1,2,3, Blessing S Ofori-Atta1
1Division of Epidemiology, Department of Internal Medicine, University of Utah School of Medicine, Salt Lake City, UT, USA.
Cancer causes & control : CCC
|November 29, 2023
概括
关于种族和种族的癌症登记数据经常错误地分类个人,特别是美国印第安人或阿拉斯加土著幸存者. 医院准确的数据收集对于可靠的癌症统计数据至关重要.
科学领域:
- 流行病学 流行病学
- 公共卫生 公共卫生
- 癌症监测 癌症监测
背景情况:
- 准确的种族和民族数据对于癌症监测和了解健康差异至关重要.
- 中央癌症登记处在收集精确的种族和种族信息方面面临挑战.
研究的目的:
- 评估犹他州癌症登记处收集的种族和西班牙裔种族数据的准确性.
- 将注册所收集的数据与癌症幸存者的自我报告信息进行比较.
主要方法:
- 分析了2015-2022年期间调查的3,162名癌症幸存者的数据.
- 将注册所记录的种族和种族与自我报告的调查答案进行比较.
- 计算每个种族和民族类别的敏感性和特异性.
主要成果:
- 西班牙裔种族数据显示高准确度 (灵敏度为88.2%,特异性为96.5%).
- 种族数据显示出显著的差异,美国印第安人/阿拉斯加原住民 (9.3%),亚洲人 (40.6%),黑人 (60.9%) 和太平洋岛民 (25.0%) 个体的敏感性较低.
- 对大多数种族类别 (>99%) 观察到高特异性,除了白人 (47.4%).
结论:
- 自我报告的种族/种族与犹他州癌症登记处所持有的数据之间存在显著的差异.
- 美国印第安人或阿拉斯加土著人的错误分类是一个重大问题.
- 医院需要改进数据收集方法,以获得准确的癌症登记信息.
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