关于儿童癌症疼痛管理应用程序的家长和临床医生的看法和建议:一种定性联合设计研究
Lindsay A Jibb1,2, Surabhi Sivaratnam2,3, Elham Hashemi2
1Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Canada.
PLOS digital health
|November 29, 2023
概括
家长们看到了一个共同设计的应用程序的潜力,以帮助在家中管理儿科癌症疼痛. 该应用程序可以提供实时支持,减少护理人员的负担,并改善儿童的疼痛结果.
科学领域:
- 数字健康干预措施 数字健康干预措施
- 儿科瘤学 儿科瘤学
- 疼痛管理 疼痛管理
背景情况:
- 儿童癌症疼痛是一个很大的负担,通常在资源有限的环境中像家里一样进行管理.
- 数字创新,如移动应用程序,有望改善幼儿疼痛管理.
研究的目的:
- 探索家长对应用程序实用性的看法,要求的功能,以及在管理儿科癌症疼痛方面的潜在挑战.
- 共同设计一个数字工具,以支持癌症儿童的疼痛管理.
主要方法:
- 与癌症儿童的父母和儿科瘤学临床医生进行半结构化,共同设计的访谈.
- 对转录的采访数据进行主题分析.
- 利用技术接受和家庭照顾理论.
主要成果:
- 父母和临床医生将应用程序视为一种有价值,安全和方便的工具,用于管理儿童癌症疼痛.
- 应用程序的概念被认为是提供实时,多式联络支持,并减少家长的情感负担.
- 关键的设计建议包括可访问性,症状跟踪和基于证据的建议.
结论:
- 与家人和临床医生共同设计数字工具对于有效的儿科癌症疼痛管理至关重要.
- 一个应用程序可以为护理人员提供信息和支持,从而改善疼痛的结果.
- 解决潜在的工作负载挑战对于成功实施数字健康工具至关重要.
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