克鲁斯 - - 第一百天的经历告诉我们什么
Sophia Neisinger1,2, Bernardo Sousa Pinto3,4,5, Aiste Ramanauskaite1,2
1Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany
Qatar medical journal
|November 29, 2023
概括
新的慢性疹自我评估 (CRUSE) 应用程序改善了慢性自发疹 (CSU) 患者的跟踪. 早期结果显示,大多数用户的CSU控制能力较差,突出显示需要更好的疾病管理工具.
科学领域:
- 皮肤病学 皮肤病学
- 数字健康数字健康
- 患者报告的结果
背景情况:
- 健康应用程序对于管理慢性疾病越来越重要.
- 慢性自发性疹 (CSU) 需要对患者进行一致的监测.
- 传统的基于纸张的追踪对CSU来说是不方便的,可能会降低合规性.
研究的目的:
- 为CSU患者推出慢性疹自我评估 (CRUSE) 移动健康应用程序.
- 对早期CRUSE用户及其报告的疾病数据进行描述性分析.
- 评估CRUSE应用程序在监控CSU活动和控制中的初始实用性.
主要方法:
- 患者使用智能手机上的CRUSE应用程序来记录患者报告的结果措施.
- 捕获的数据包括疹活动评分 (UAS),血管活动评分 (AAS),疹控制测试 (UCT) 和血管控制测试 (AECT).
- 用户人口统计和疾病指标的描述性分析使用了来自疹参考和卓越中心 (UCARE) 的数据进行.
主要成果:
- 克鲁斯在多个欧洲国家和土耳其可用.
- 620名用户 (72%为女性,平均年龄为36.6) 的早期数据显示,平均每日UAS为2.1,AAS为7.2.
- 平均UCT (7.0) 和AECT (8.1) 值表明,大多数CRUSE使用者体验到控制不良的CSU.
结论:
- 该CRUSE应用程序解决了在CSU中对方便和合规的疾病监测的重大需求.
- 初步发现显示,早期CRUSE用户的疾病控制水平较低.
- 未来的研究将分析后续数据,以评估治疗对CSU活动和控制的影响.
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