了解全球大脑数据治理:支持全球大脑数据治理话语的伦理立场
Paschal Ochang1, Damian Eke1, Bernd Carsten Stahl1,2
1Centre for Computing and Social Responsibility, De Montfort University, Leicester, United Kingdom.
Frontiers in big data
|November 29, 2023
概括
导航大脑数据治理需要理解不同的伦理观点. 这项研究探讨了神经科学家的观点,以为负责任的脑数据管理提供全球框架.
科学领域:
- 神经科学是一个神经科学.
- 数据治理数据治理
- 生物伦理学生物伦理学
背景情况:
- 越来越多的"大脑数据"需要强大的治理框架.
- 跨司法管辖区的数据共享带来了复杂的伦理和法律挑战.
- 关于大脑数据治理的现有研究是有限的,缺乏背景深度.
研究的目的:
- 探索大脑数据治理的伦理基础.
- 弥合全球大脑数据管理的上下文理解的差距.
- 为制定一个全面的全球治理框架提供信息.
主要方法:
- 对21位神经科学家的采访进行二次分析.
- 参与者来自国际大脑倡议 (IBI,LATBrain,SONA).
- 伦理理论被用来分析关于大脑数据治理的观点.
主要成果:
- 在全球神经科学家中确定了各种不同的上下文道德立场.
- 突出了影响大脑数据研究的各种伦理观点.
- 在国际大脑数据倡议中揭示了潜在的伦理考虑.
结论:
- 全球大脑数据治理面临着许多挑战,需要仔细考虑.
- 推进全球知情框架需要对道德考虑进行彻底审查.
- 了解不同的伦理观点对于有效的脑数据管理至关重要.
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