患者和护理人员在初级脑瘤后恢复工作
Emma Nicklin1, Isaac Phang2, Susan C Short1
1Leeds Institute of Medical Research, St James's Hospital, University of Leeds, Leeds, UK.
Neuro-oncology practice
|November 29, 2023
概括
在脑瘤 (BT) 诊断后重返工作是具有挑战性的. 患者需要更好的雇主支持和信息,以便在返回工作 (RTW) 之旅期间应对职业期望和财务压力.
科学领域:
- 神经瘤学神经瘤学
- 职业健康 职业健康 职业健康
- 心理社会瘤学
背景情况:
- 有限的研究存在于脑瘤 (BT) 患者的回归工作 (RTW) 经验.
- 了解这些经历对于支持患者及其护理人员至关重要.
研究的目的:
- 探索在脑瘤诊断后返回工作的患者的职业期望,经验和满意度.
- 调查无法返回工作的患者及其家庭护理人员所面临的挑战.
主要方法:
- 一个多中心的,涉及半结构面试的横截面研究.
- 使用反射主题分析分析了来自17名患者和6名护理人员的数据.
- 参与者是被诊断患有原发性脑瘤的成年人,他们在诊断前就业.
主要成果:
- 患者对RTW表达了不同的期望,强调需要更好的治疗前信息来了解康复和副作用.
- 技术劳动的主要驱动因素包括对正常生活的渴望和财务需要.
- 雇主支持 (财务,情感,实践) 促进了成功的RTW,同时注意到支持不足.
- 护理人员面临着重大的工作与生活平衡挑战,由于护理需求增加,他们经常调整工作时间.
结论:
- 进一步的研究对于理解神经瘤学人群中的RTW至关重要.
- 干预措施应侧重于改善雇主与员工之间的沟通,以及有关脑瘤护理和RTW可能性的知识.
- 为了实现持续的就业,患者和护理人员都需要加强支持系统.
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